Hi ,
Porphyria is a very bad/fatal if precautions are not taken, disease
and masquerades as other "ailments, even MS.
If a Porphyric has surgery, Dental or regular, without precautions,
they can die, and have.
Please contact Dr. Morton, at 503-494-8415 for more information, and
about protocols for the testing, and precautions.
See my web page at:
http://dr-alva-irish.webjump.com
You need to look up Porphyria at your library.
Dr. Morton heads the Porphyria research facility at Oregon University.
There is an American Porphyria Foundation, but it is a bogus deal,
only helping those porphyrics who have extremely high Porphyrin levels
so they can get their grant money.
Many people have committed suicide because of that organization's
arrogant dismissal of extremely ill Porphyrics who don't have the
levels they want.
In my own experience, my tests were done with an incorrect protocol,
and thus the levels were falsely low, so they abused me in error, but
I sure learned about them from personal experience.
Dr. Morton, on the other hand is a wonderful guy.
I am in Ft. Inn, SC. He will help ANY Porphyric anywhere.
You need to look it all up, there are several kinds. The Cain kinds
are Variegate porphyria and Porphyria Cutanea Tarda.
King George had Variegate Porphyria.
You can call me if you want, 864-409-8501.
There is another group that is run by weirdoes, Diana something, I
can't remember, is one of them, They call themselves "The Porphyria
Group".
Several of them have gone whacked out and have forged Mayo papers.
Other than those two bewares, you need to get tested.
If precautions are taken, you can live a perfectly normal life, except
for going out into the sun.
Let me know if you want my help, etc.
Alva :)