I know Lee but Nancy wanted me to post it. so I sent it to you. I am doing
pretty good now days. I have my good days and my bad but I make my self snap
out of the bad I go to church 3 times a week. I can do a few things now.
Just keep up the good work Lee. LaMona
----- Original Message -----
From: "Lee Cagle" <caglel1(a)juno.com>
To: <Cagle-L(a)rootsweb.com>
Sent: Friday, August 22, 2008 9:26 PM
Subject: [CAGLE] Fw: Medical for info for Wm C Anderson group
(HEREDITARYHEMOCHROMATO SIS)
Sure, Lamona
This information is posted regularly by Nancy Jane, but it is probably
time to make everyone aware for those who have not been on the Cagle List
until recently.
Lee Cagle, ph. A/C 405-843-8812
3227 Wilshire Terrace, Okla City, OK 73116-3023
---------- Forwarded Message ----------
----- Original Message ----- From: Njbalmer(a)aol.com To: LaMona(a)bak.rr.com
; s_r_goodson(a)hotmail.com Sent: Thursday, August 21, 2008 1:32 PMSubject:
Medical for info for Wm C Anderson group (HEREDITARY HEMOCHROMATOSIS)
Hi LaMona & Sally (can one of you put this on for the group to read.
(Yes I do not know how to work sending the e-mail's to the site, but I do
know how to read them all. I only know how to work the family tree and
find info. Not good on the compurter Sorry.) I can't run my acestery on my
AOL for on my family tree anymore for some reason?? . not good a change.
The family of William Columbus & Missouri Martha Elizabeth Anderson
Anderson. This family group needs to know about cousin's who marry to
each other. My gr gr gr grandparents were 1st cousin's and they had seven
children. These seven children we have a blood problem the is passed down
from generation to generation. They had seven children and out of the
seven six of these children have passed this down. I want you to know that
this blood problem is 100 o\o fatal if you do not know you have it. You
can live a normal and long life if it is under control. You need to have
test's done to find out if you have it and a!
lot of doctor's do not test for this. It is called Hereditay
Hemochromtosis. (blood lines to close) I have this and have been in
treatment a long time now. My father, grandmother, gr grandmother,
uncle's, aunts all have this. I have for daughters all of them have it
(did not skip one of them) I have 11 blood grandchildren an only six of
them have been gene tested. out of the six it skiped 4 of them thank
goodness. (they will not be able to pass it down) the to the have it is my
15 year old grandson had one gene and has to be watched) the other is a
granddaughter and she is 10 she is a double gene and can become ill and
die as a child. Very important. I send this to my Cagle group all the time
to make sure they know that Charels Cagle and Susannah Cagle my gr gr gr
grandparents family members no about this.
NancyJane Mathews Balmer
http://munstermom.tripod.com/hemo.html
HEREDITARY HEMOCHROMATOSIS
Hereditary Hemochromatosis,[HH] is a genetic condition of iron overload
affecting approximately 1 out of 200-300 people, with 1 in 8-10 people
being carriers. It is 100% fatal if not diagnosed early & treated
aggressively, yet with early diagnosis & treatment, one can expect a
normal life span.
Disclaimer:
I am NOT a physician. I am a registered nurse, and a wife and a mother,
with a special interest in HH, due to the fact that my family has been
diagnosed with it. Therefore; while I have spent many hours researching
information on HH, please realize that the advice & links presented here
should be discussed with your family physician! I applaud the many doctors
who are willing to maintain an open & communicative relationship with
their patients, in order to develop the best healthcare plan possible!
Cindy Munn RN
In this table you will find many of the organs/systems that may be
affected by Hereditary Hemochromatosis, as well as the symptoms or
problems that may be associated with HH. These are resources, urls,
articles, etc. which I have located in my research on HH. I have
attempted to somewhat "categorize" them & place them under their
corresponding symptoms/problems in this table. If you click on these
sections, [they should be highlighted in orange] it will take you to
resources that I have found which are related to that particular topic.
If anyone finds any missing links, or knows of a resource which I might
want to add to my list, please let me know!
HEART
Chest pain, shortness of breath, fatigue,
arrythmias [irregular heartbeats] rapid pulse,
cardiomegaly, congestive heart failure [CHF]
heart attack < 50 yrs. old
LIVER
Cirrhosis, [even if you are not a drinker!]
liver cancer, hepatoma,
elevated liver enzymes, liver failure,
abdominal pain or tenderness,
especially in the right side.
ENDOCRINE specific to the PANCREAS
Cancer of the pancreas,
insulin resistance, diabetes, "bronze diabetes"
ENDOCRINE specific to the REPRODUCTIVE SYSTEM
Hypogonadism, decreased libido, impotence,
irregular menses, early menopause,
infertility, sterility
ENDOCRINE
specific to
THYROID &/or PITUITARY Hypothyroidism, always feeling cold,
hair loss or early graying, fatigue
***********
Psychological disorders, depression,
confusion, memory loss JOINTS
Arthritis & pain in the joints, often seen in the knees, hips & the first
2 fingers,
joint replacements, CPPD, psuedogout, RA
IMMUNE SYSTEM Frequent infections, flus, colds,
weakened immune system.
Info. on the Vibrio vulnificus virus found in seafood, which can be deadly
to those with HH. SKIN
Rusty or gray tone to the skin,
golden tan color, rashes or skin changes, hair loss, porphyria cutanea
tarda [PCT]
In addition to all of the above, it may even be [mis]diagnosed as:
Chronic Fatigue Syndrome [CFS]
Fibromyalgia [FM]
Lupus, Leukemia
Rheumatoid Arthritis[RA]
Depression
Click here to read more about HH associated with
fatigue, weakness, muscle pain, depression.
What does iron do to the BRAIN?
Alzheimers or Parkinson's, strokes, seizures It is very important that the
proper tests are ran to check your iron status. A hemoglobin [hgb] level
alone is not sufficient & patients may even have a low hgb. level, yet be
iron overloaded. A low hgb. should always be evaluated to find the CAUSE
of the anemia before assuming that it is from iron deficiency & routinely
treating with iron. Do NOT ever take iron without first knowing your true
iron status!
The correct lab tests that you should ask your doctor to do are:
Iron
Ferritin
Total Iron Binding Capacity [TIBC]
Transferrin Saturation[TS]
These should be done in the morning hours, after an overnight fast.
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